Archive for July, 2010

The Class of 2010!

Saturday, July 24th, 2010

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Nick Lanzi’s parents, Carolyn and Barry Lanzi, help their son prepare for graduation from Vestavia Hills High School Thursday. Nick Lanzi is among several students with special needs graduating from area high schools this spring after years in inclusive settings.(The Birmingham News / Joe Songer)

Don’t tell Nick Lanzi what he doesn’t know.

Don’t tell the new Vestavia Hills High School graduate what he can’t know.Because he knows better.

When doctors diagnosed Lanzi with Down syndrome when he was just a few days old, they told his parents he would never have intelligence surpassing that of a 3-year-old.

But when his 11th-grade American-history teacher passed him a copy of a test made specifically for “special needs” students, he asked for a “real” test instead.

He took it. He made a 96, the highest grade in the class. He made his parents, his teacher and everybody in the class proud.

Lanzi knows he is different. He just knows a different kind of different.

Lanzi, 19, is part of the first generation of special-needs students, including many graduating this spring, who have been taught in regular classrooms their entire time in school. Inclusion is a practice in which mentally or physically disabled students spend most or all of their time learning alongside typical students.

“Inclusion works best when you have a good team of administrators, special educators, good accepting classroom teachers and good peers,” said Carolyn Lanzi, Nick Lanzi’s mother. “He has benefited so much from inclusion, as much from the socialization as the academics. I’m not going to say we haven’t had stumbling blocks, but the parent has to be the advocate.”

Inclusion is a still-growing concept — one that’s been around since the 1970s, but became the norm only in the mid-1990s, advocates say. Research has shown that most physically and mentally disabled students do better academically and socially when with peers. Segregating a child from a regular classroom, research shows, may do nothing but harm the child’s self-esteem and hinder the learning process.

Enhanced settings

Advocates contend that children with disabilities can be successfully educated in regular classroom settings if the right aides and supplemental services are provided.

“There are much higher expectations and less assumptions when a special-needs child is in a regular classroom,” said Susan Ellis, community living coordinator for The Arc of Shelby County. Ellis’ own son, Matthew, has Down syndrome. “Certainly the social skills that come from inclusion are important as well. A lack of social skills is what prevents adults with severe disabilities from being successful.”

Special-needs students are placed in what is called an Individualized Education Program. It includes a written statement of special education and related services the child will need in order to be properly educated, as well as any modifications to the regular curriculum.

The Individuals With Disabilities Education Act, as amended in 2004, does not require inclusion. Instead, the law requires that children with disabilities be educated in the “least restrictive environment appropriate” to meet their “unique needs.”

Inclusion, advocates say, allows students with physical and mental disabilities to experience all aspects of regular school life.

If Lanzi is a measure, the process works.

Everyone at Vestavia Hills, it seems, knows Lanzi. During his four years of high school, he would walk the halls between classes high-fiving friends. He was inducted into the Student Government Association and was named Most Admired by his peers for Who’s Who among his senior class.

The story is much the same for Whitley Means Ware, a 20-year-old with Down syndrome who graduated from Carver High School on Tuesday night.

Not only was she in the regular classroom, allowing her to make friends and learn from her peers, but she was on the varsity cheerleading squad the last two years of high school.

“It helped a lot with her social skills,” said her mother, Brenda Ware. “She is so outgoing anyway, but being around others helped her with her communication skills. Everybody from the teachers to the custodians to the cafeteria workers know her and love her.”

That’s not to say that inclusion always works. It is up to parents and school administrators whether they want their child in a regular classroom setting or to be segregated in a special-education classroom. Many special-needs children do both.

Just ‘there in body’

Still, many schools simply place special-needs children in the back of a regular classroom and give them “baby work,” says Deborah Mattison, a Birmingham lawyer who specializes in special education and disabilities.

“A lot of times, kids can be dumped into a classroom with an aide, and the aide does all the work for them,” she said. “That’s not the way it’s supposed to work. It’s about redesigning the curriculum to make it more functional for the child. Sometimes the child is there in body but isn’t really part of the class.”

When implemented correctly, she said, inclusion works. The social skills alone, she said, are invaluable.

“Oftentimes when these kids leave school, the only people who hang out with them are family members and people who are paid to be with them,” she said. “Inclusion allows these children to make friends, and that’s important.”

Special education has come a long way since the federal Education for All Handicapped Children Act was passed in 1975. Prior to that law, students with special needs were frequently not allowed to enroll in public school. The law was reauthorized over the years and was renamed the Individuals with Disabilities Education Act.

Segregating special-needs children into separate classrooms or schools was common then, Ellis said. But that began to change in the 1990s, when research began showing benefits to inclusion.

While there still are children in segregated classrooms, inclusion is becoming the norm, especially since the No Child Left Behind law was enacted in 2001, Mattison said.

That law states that all children must be educated by highly qualified teachers and requires all students — regardless of their disabilities — to meet state goals on standardized tests.

That caused school systems throughout the country to turn their attention to children with disabilities, by developing and implementing strategies to move those students forward academically.

“Education has come so far,” Lanzi said, thankful for the advocates who she says paved the way for her son. “Unless they’re given the opportunity, you don’t know what they’re capable of. You can’t just close the door on them.”

Fine Gael set up a Disability Policy Commission

Saturday, July 17th, 2010

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FG to set up Disability Commission

Fine Gael Disability Spokesman David Stanton has announced that the Party is setting up a Disability Policy Commission in order to channel concerns from the sector into a new Disability Policy.

The Commission is being set up at the request of Party Leader Enda Kenny TD. Deputy Stanton said he was very happy to accept responsibility for its implementation.

“People with disabilities are still being sidelined by the Government. In spite of numerous promises from Fianna Fáil and the Greens, much of the national disability strategy has not been implemented.

“Fine Gael is very worried that further cutbacks to disability services will now be inflicted.

“As Fine Gael Disability Spokesperson I already maintain regular contact with individuals and groups. Fine Gael is now taking this a stage further by setting up a new Disability Policy Commission.

“This Commission will comprise a small panel of representatives and experts, and will channel the concerns of disability organisations, support groups and carers. These issues will be fed into the Party’s new Disability Policy, which will address the many areas of the national disability strategy which have still not been implemented.

“Fine Gael’s policy will be developed from a human rights perspective, encompassing the values enunciated in the UN Convention on the Rights of Persons with Disabilities.

“It will be based on three main concepts of independent living, universal design and individualised funding, all of which aim to ensure that people with disabilities live full lives as active members of their communities.”

Eilish O Regan – You are so so right! Well Done!!

Saturday, July 10th, 2010

Have families who rely on disability services been used as pawns? Why were they forced to take to the streets across the country yesterday , disrupting their already highly stressed lives caring for people with a disability to protest about cuts in frontline services?

Behind the scenes was a carefully orchestrated public relations battle between private companies, hired by the voluntary bodies, and government spokesmen.

On the face of it, people with a disability and their families are victims of years of inertia on the part of the Department of Health, health boards and the Health Service Executive (HSE) to ensure the vast sums paid to disability organisations are properly accounted for .

The 40-plus voluntary bodies, which received over €1bn to provide disability services this year, are failing to show proper financial transparency and have highly paid executives on their staff as well as outdated management structures.

Health authorities here have been content to hand over taxpayers’ money to these organisations for years without tackling inefficiencies that have now come to a head due to the cuts imposed this year.

The response of the Brothers in Charity was to warn that respite and other services might have to be cut while the Sisters of Charity is to impose similar reductions in service in Dublin.

Yet we know little of how these organisations are run, the level of salaries paid and what efforts have been made to follow up on a highly critical report by the Comptroller and Auditor General four years ago which called for a massive overhaul of this whole area.

It found that one leading provider of disability services got €288m in health funding without furnishing any audited accounts.

Despite this lack of transparency, the health service imposed no sanction and did not alter its level of funding.

The investigation by the taxpayers’ watchdog found poor controls generally over non-profit organisations providing services to people with a physical or mental disability.

A spokesman for the St John of God organisation at the time confirmed it was the unnamed organisation referred to in the report. It said pressure on resources meant the emphasis was put on hiring frontline workers rather than adminstrative staff. It later produced audited accounts.

The report showed that, in one year, the bodies received €877m in funding to care for 65,000 people with a physical or mental disability. Yet, in many cases, financial reporting norms were not being followed.

In one year, 25 organisations got more than €10m; another 75 got between €1m and €10m; while another 683 grants, averaging €100,000, were distributed to smaller bodies.

In 12 of the 42 cases examined, financial statements for 2003 were not on file, although the bodies concerned received €100m in funding.

Checks of annual financial statements varied. It was noted that spending on headquarter costs and overheads was not generally reported.

And remuneration packages of executives and management of non-profit organisations were not generally disclosed.

Junior Health Minister John Moloney was yesterday talking about the need for backroom savings in areas like transport services and procurement where voluntary bodies could band together to get greater value for money.

There are other key issues that need to be tackled, such as the quality of service provided by several of the voluntary organisations, and anecdotal accounts of families being afraid to question what they were receiving for fear of losing out.

There is now talk of sending auditors in to examine the accounts for these organisations in advance of the Budget.

The run up to the Budget gives both sides time to do a overdue root and branch overhaul.

- Eilish O’Regan

Irish Independent Thursday July 8th

Speech and Language Therapy – Cut Backs

Thursday, July 8th, 2010

The following is the text of an email we received here at myspecialneeds today.

“To Whom It May Concern:

My son Charlie was born nearly 3 years ago with down syndrome and is thriving to date thank God.

He attends Cheeverstown for all his needs -which I have to say they are brilliant in all aspects of his requirements. We received a letter this morning stating due to cut backs the speech and language teacher he had is being cut!!!

I have worked full time since I left school and I don’t expect anything for nothing but I feel that this is one step too far and this could put my son Charlie back in his progress to date.  I ran the marathon 2 years ago to fund rise for Cheeverstown and raised over €11,000 to try help Cheeverstown provide all the services required for families in our situation.

If you could look into this matter I would be extremely grateful for your help.

If you require any more information please just let me know. Thank you… “ 

Robbie O’Neill

If you have a similar story – please do not hesitate to contact us and we will highlight your issue here as well.

We will be taking action on this matter on behalf of those suffering these ill informed cutbacks.Rest assured that we will not stand idly by and let this happen. Those responsible for these cutbacks will be met with  fierce hostility if the powers that be do not stop taking advantage of the weakest and most vulnerable in our society. This email comes to us the same day that we all hear that the banks, that we the taxpayer rescued – failed to collect the monies due to them (owed to us the taxpayer!).

The NAMA chairman Frank Daly unleashed a blistering attack on the banks. He said the banks had show “remarkable generosity” to developers and didn’t even use all options to make them repay their loans”. I take it we can take “remarkable generosity” as a dereliction of their duties – and yet where is the fulsome condemnation for this scandal from our politicians?  Where is the sacking of the senior bankers? Where is the regulator?. Not a word about it! Cronyism is alive and well in Ireland!

Special Needs Memoirs – try one?!

Sunday, July 4th, 2010

Okay, so they’re not exactly bodice-rippers. No one will mistake them for the latest glossy-covered mass-market paperback best-sellers. There’s nothing mindless about them. And since you may want to save them for reference or inspiration, you’ll want to be careful about handling them with sunblock-coated fingertips. But if you’re a parent who usually reads scholarly disability tomes intended for professionals, or how-to books on tackling behavioral or developmental challenges, or self-help books full of ambitious plans and stern suggestions for strengthening your child and family, these special-needs memoirs — written by parents, siblings, professionals, and people with special needs — will be a walk in the park. Most offer enough love to shame a romance novelist, mysteries as good as anything by Grafton or Parker, inspiration sufficient to fill a library of Chicken Soup books, plus tragedy and triumph of Oprah-Book-Club-like proportions. Lest you feel guilty for putting those more serious books aside, they’ll also teach you a thing or two about the disabilities they deal with. Toss a couple in your beach bag or carry-on for some summer reading that will stay with you long after the sunburn fades.

Will’s Choice: A Suicidal Teen, a Desperate Mother, and a Chronicle of Recovery
by Gail Griffith
Why would a boy with so much going for him try to end it all? His frantic mother tries to find the clues.

Elijah’s Cup: A Family’s Journey into the Community and Culture of High-Functioning Autism and Asperger’s Syndrome
by Valerie Paradiz
One mom’s journey from despair to acceptance to advocacy for her autistic son.

A Smile as Big as the Moon: A Teacher, His Class, and Their Unforgettable Journey
by Mike Kersjes with Joe Layden
If this stellar story of a special-education teacher inspiring his students to reach for the stars isn’t being made into a Disney movie yet, it should be.

Little People: Learning to See the World Through My Daughter’s Eyes
by Dan Kennedy
A dad does some research into dwarfism to figure out his daughter’s place in the world, and his place in her life.

An Anthropologist on Mars: Seven Paradoxical Tales
by Oliver Sacks
Neurologist Sacks tells the tales of a child artist with autism, a surgeon with Tourette’s, and autistic author Temple Grandin, among others. One of the essays, about a blind man regaining his sight with mixed emotions, was made into the movie romance “At First Sight.”

Some Kind of Genius: The Extraordinary Journey of Musical Savant Tony DeBlois
by Janice DeBlois and Antonia Felix
Hard times and amazing gifts mark the story of Tony and his mother, Janice, told with a breadth of biographical detail usually reserved for celebrity tell-alls.

What It Takes to Pull Me Through: Why Teenagers Get in Trouble and How Four of Them Got Out
by David L. Marcus
Teens in behavioral boot camp. Will they get better? Will they get worse? Will their parents’ insurance keep paying for all of this?

Not Even Wrong: Adventures in Autism
by Paul Collins
As young Morgan’s parents realize that the things they find quirky and endearing about their son are seen as warning signs and symptoms by professionals, his dad looks into the history of autism and finds some interesting characters.

The Power of the Powerless: A Brother’s Legacy of Love
by Christopher de Vinck
A sibling speaks, with deep love and admiration, about his severely disabled brother and his parents’ ardent, uncomplaining care for him.

The Ride Together: A Brother and Sister’s Memoir of Autism in the Family
by Paul Karasik and Judy Karasik
More siblings heard from, this time in a unique memoir that alternates between text and comics.

Send in the Idiots: Stories from the Other Side of Autism
by Kamran Nazeer
This is the book that started my summer off, an autistic man’s revisiting of classmates from an early childhood autism class. An engaging read, it’s fascinating both for the stories it tells and for its first-person view of autistic traits and eccentricities.

To the Left of Inspiration: Adventures in Living with Disabilities
by Katherine Schneider
This “honest, funny book about living with disabilities,” by a woman who has been blind since birth but seems to have a pretty well-developed sense of humor, is not only a lot of fun to read, it has another thing I like in a “beach read”: It’s slender, with short chapters.

By , About.com Guide