To this end 22q11 Ireland will work together with:
- Families affected by the 22q11.2 deletion.
- Other rare chromosome disorder groups.
- National and international organisations concerned with rare chromosome disorders.
- The medical and scientific community.
- Educational institutions.
- Government bodies.
Their Website is www.22q11ireland.org and they are organising a conference
This year’s conference will be held on the
19th June 2010
in
The Best Western Ashling Hotel, Parkgate Street, Dublin 8.
Our Keynote speaker will be Donna Cutler-Landsman author of Educating the Child with Velo-Cardio-Facial-Syndrome. Donna is an educator who has spent 30 years in the classroom teaching children in grades 5 through 8. She has also served as a co-operating teacher with the School of Education, University of Wisconsin-Madison for 15 years and as an educational consultant for issues related to the special education needs of children with Velo-Cardio-Facial-Syndrome/22q11 Deletion Syndrome. She is a past president of the VCFS Educational Foundation and a popular speaker on issues related to VCFS/22q11 and education throughout the United States and abroad.
Please log on to www.22q11ireland.org for more details
Tags: 22q11 Deletion syndrome, Cinference, diGeorge Syndrome, VCFS
