Posts Tagged ‘VCFS’

22q 11 Deletion Syndrome (diGeorge Syndrome) Conference

Wednesday, June 2nd, 2010
22q11 Ireland provide help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/V.C.F.S. Through education, research, outreach and advocacy we seek to raise awareness of this little known condition.

 

The 22q11 Ireland Support GroupTo this end 22q11 Ireland will work together with:

  • Families affected by the 22q11.2 deletion.
  • Other rare chromosome disorder groups.
  • National and international organisations concerned with rare chromosome disorders.
  • The medical and scientific community.
  • Educational institutions.
  • Government bodies.

 

Their Website is www.22q11ireland.org and they are organising a conference

This year’s conference will be held on the

19th June 2010

in

The Best Western Ashling Hotel, Parkgate Street, Dublin 8.

 

Our Keynote speaker will be Donna Cutler-Landsman author of Educating the Child with Velo-Cardio-Facial-Syndrome.  Donna is an educator who has spent 30 years in the classroom teaching children in grades 5 through 8.  She has also served as a co-operating teacher with the School of Education, University of Wisconsin-Madison for 15 years and as an educational consultant for issues related to the special education needs of children with Velo-Cardio-Facial-Syndrome/22q11 Deletion Syndrome.  She is a past president of the VCFS Educational Foundation and a popular speaker on issues related to VCFS/22q11 and education throughout the United States and abroad.

 

Please log on to www.22q11ireland.org for more details